NEWS
 
WATCH: 12-year-old pushes for drug funding at Queen's Park
Her rare form of cystic fibrosis can only be helped by $300,000 a year treatment.
2 0

The province says it's still working to get a drug that treats a rare form of cystic fibrosis covered by OHIP.

The 12-year-old girl affected came to Queen's Park to push the government, the day after word broke a woman who was fighting for cancer treatment coverage died.

Madi Vanstone says before taking the drug Kalydeco, she had a hard time breathing and would get headaches. Now, her lungs are working normally. She even ran 6 km the other day.

This drug may also prevent her from having to get a lung transplant in a few years.

Mom Beth Vanstone says if her daughter doesn't continue to use the drug, she won't live as long.

Health Minister Deb Matthews says Ontario and other Canadian provinces are still meeting with the drug supplier to see if a low cost can be worked out.

The Vanstone family is under even more of a crunch now than when they came to Queen's Park Two Months ago. Their insurance company reassessing their file. Up until now, it has been paying half of the over $300,000 a year price-tag of the drug. The drug company has been covering 30 per cent on top of that.

Categories:

DON'T MISS

TED RADIO HOUR

Welcome to TED Radio Hour hosted by Guy Raz, Saturdays at 6pm and Sundays at 7pm

 
2 0

The province says it's still working to get a drug that treats a rare form of cystic fibrosis covered by OHIP.

The 12-year-old girl affected came to Queen's Park to push the government, the day after word broke a woman who was fighting for cancer treatment coverage died.

Madi Vanstone says before taking the drug Kalydeco, she had a hard time breathing and would get headaches. Now, her lungs are working normally. She even ran 6 km the other day.

This drug may also prevent her from having to get a lung transplant in a few years.

Mom Beth Vanstone says if her daughter doesn't continue to use the drug, she won't live as long.

Health Minister Deb Matthews says Ontario and other Canadian provinces are still meeting with the drug supplier to see if a low cost can be worked out.

The Vanstone family is under even more of a crunch now than when they came to Queen's Park Two Months ago. Their insurance company reassessing their file. Up until now, it has been paying half of the over $300,000 a year price-tag of the drug. The drug company has been covering 30 per cent on top of that.

Top stories

Frantic search went on for nearly five minutes