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WATCH: 12-year-old pushes for drug funding at Queen's Park

Her rare form of cystic fibrosis can only be helped by $300,000 a year treatment.

The province says it's still working to get a drug that treats a rare form of cystic fibrosis covered by OHIP.

The 12-year-old girl affected came to Queen's Park to push the government, the day after word broke a woman who was fighting for cancer treatment coverage died.

Madi Vanstone says before taking the drug Kalydeco, she had a hard time breathing and would get headaches. Now, her lungs are working normally. She even ran 6 km the other day.

This drug may also prevent her from having to get a lung transplant in a few years.

Mom Beth Vanstone says if her daughter doesn't continue to use the drug, she won't live as long.

Health Minister Deb Matthews says Ontario and other Canadian provinces are still meeting with the drug supplier to see if a low cost can be worked out.

The Vanstone family is under even more of a crunch now than when they came to Queen's Park Two Months ago. Their insurance company reassessing their file. Up until now, it has been paying half of the over $300,000 a year price-tag of the drug. The drug company has been covering 30 per cent on top of that.

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  1. Angry Bill posted on 04/29/2014 04:57 PM
    While I certainly hope that the province will let her live, this liberal government unfortunately doesn't have a very good track record in saving people's lives who need it. :( I guess the province would rather spend billions on boondoggles and saving 2 liberal seats rather than spend money on a drug to save someone's life. They sure proved that with Kimm Fletcher, I just hope they don't feel like proving it with this young lady, too.
    1. Norman Carson posted on 04/30/2014 01:10 AM
      @Angry Bill Yes I agree with you so far this Liberal Government hasn't a good track record and Kathleen Wynne doesn't see it .
      I won't vote for her at all. We don't need another 5 yrs of a Liberal government running things or ruining things i should say...
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